Inspirational story of Kristian from Haven House Children’s Hospice featured on BBC Children in Need
PUBLISHED: 16:58 21 November 2016 | UPDATED: 10:22 22 November 2016
Copyright Kim Rix Photography
BBC Children in Need this year featured the incredible story of seven-year-old Kristian, who uses Haven House Children’s Hospice.
Introduced by Strictly Coming Dancing judge Len Goodman, the film, broadcast on Friday, shows all the ways the hospice, in High Road, Woodford Green, supports Kristian Marshall and his family.
Kristian, of Leytonstone, has Lennox-Gastaut Syndrome, a rare form of epilepsy where seizures can be non-stop.
For the first four years of his life he had between 50 to 300 seizures every single day.
He requires round-the-clock care and has no concept of safety. His only way of communicating is to cry, laugh or smile.
Kristian has been visiting Haven House for five years. He enjoys lots of activities with support worker Stacey Bishop who is funded by Children in Need.
Mum Mel Rinaldi said: “Haven House is a lifeline. They have got everything you could possibly think a child would want. But the biggest thing is that Kristian can be somewhere where he is completely free. For him it must be paradise.”
Mike Palfreman, chief executive of Haven House, said: “We are absolutely thrilled to have been a part of this year’s BBC Children in Need appeal.
“To be able to raise awareness of the care we give to Kristian and other life-limited children in our area in front of millions of viewers is a rare opportunity.
“We are so grateful to Children in Need for their continued support of our hospice and of course to Mel and Sean for bravely speaking about the difference we make to their lives.”
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To find out more about Kristian’s story click here.
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