Barkingside mum of boy who has up to 300 seizures a day pleads for special bed
A two-year-old who suffers up to 300 seizures a day, is in need of a specialist bed so he can sleep in safety.
Kristian Marshall, of Fullwell Avenue, Barkingside, suffers from Lennox Gastaut syndrome, a rare form of epilepsy which can cause anything from 50 to 300-plus seizures a day, with the majority occurring when he is tired.
His mother Melanie Rinaldi, who is a trustee of a parents’ support group Epilepsy Sucks UK, has found a specialist bed which is made of soft yet sturdy materials, but which costs �2,380.
She said: “It is a strange condition which he was probably born with but I started to see symptoms when he was six months old.
“I can’t put into words how much the bed would mean. It is so hard to see him wake up with cuts and bruises all over him and if he had the bed, I could rest assured knowing he was safe.”
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Kristian currently sleeps in a standard wooden cot and wears a special helmet during the day.
Miss Rinaldi added: “I like him to get a bit of air at night if possible. This bed will be an ideal solution for us. It would mean Kristian could use it during the day when he is having a particularly bad time as it will be somewhere where he can’t hurt himself.”
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She has turned to leading UK children’s disability charity Newlife Foundation to help her raise funds to buy the bed.
Newlife CEO Sheila Brown, said: “Our equipment grants are so vital to so many children, offering practical support to families in need.
“However, because of the huge demand, we are calling for help from local heroes to help us raise money to fund equipment.”
If you think you can help, contact the Newlife community fundraising team on 0800 988 4640.